Little Man Has Doc’s Heart

159620_laBonded by baseball, Halladay and McFadyen family hook up for a weekend to remember in Philadelphia

BOB ELLIOTT, TORONTO SUN

FIRST POSTED: | UPDATED: 

PHILADELPHIA – As usual when batting practice ended on Saturday the Philadelphia Phillies headed for the first base dugout.

Some couldn’t wait to get inside to the air-conditioned clubhouse.

Others headed to the video room for one final look at Jays pitcher Shaun Marcum and others wanted a Red Bull.

“You could see Roy Halladay walking across the infield, deep in his mode of concentration, and then he saw Isaac,” said Andrew McFadyen. “Roy’s face lit up … and so did Isaac’s.”

For the next 15 minutes Halladay stayed on the field with Isaac, 5, his younger brother Gabriel, four, and parents Ellen Buck-McFadyen and Andrew McFadyen, of Campbellford, Ont.

Halladay, his wife Brandy, and young Isaac have been pals for a few years since Isaac arrived at the Rogers Centre in Doc’s Box one weekend afternoon from Sick Kid’s Hospital.

You know about Halladay, his wins, his strikeouts, his complete game and bringing groups to Rogers Centre and Citizens Bank Park,

You may not know a lot about brave young Isaac.

At 18 months, in November of 2005, he was diagnosed with Maroteaux-Lamy Syndrome, or MPS VI. The unfair disease is caused by an enzyme deficiency, which stunts growth and causes joints to stiffen and heart valves to fail.

Isaac’s health is as good as it has ever been up to this point, according to his father, who says Isaac’s growth is progressing at a slower pace, but he has more mobility in his shoulders of late.

Treatments at Sick Kids, where he gets a weekly enzyme-replacement therapy, were moved up because of the G-20 Summit this past week. The treatments are Isaac’s lifeboat until a cure for his disease is discovered.

Isaac gets a synthetic version of the enzyme lacking in his blood.

The door-to-door process from Campbellford takes about 12 hours and comes in at a cost of about $500,000 to

1 million a year. The McFayden family credits Christina Blizzard of Sun for helping get government approval.

“I can’t speak more highly of Roy and Brandy,” Andrew McFadyen said from his downtown Philadelphia hotel.

“They are class acts, kind and caring. They truly go out of their way to make the world a better place for those around them. They use their position to give back and I think that is what makes the Halladays so amazing.”

The McFadyens arrived in town at 1 a.m. Saturday making the 81/2 hour drive from Kingston where McFayden teaches, missing Halladay’s seven scoreless innings for the win Friday. McFadyen was on a class trip Friday and could not get away earlier to get to Philadelphia in time for Halladay’s start.

And early Sunday morn they were on the road home.

In the Phillies clubhouse on Sunday, Halladay walked past us with the purposeful stride.

“Do you have a minute?”

“Nope, I’m way behind, running late, sorry, no time,” Halladay said over his left shoulder without breaking stride.

“Ah, it’s about Isaac.”

Halladay put on the breaks like a runner leading off first who sees a line drive at the shortstop’s head.

“It was nice to see him for the first time since last season and he looked great, which is a real good sign,” Halladay said. “He’s always been energetic, he told me he was a better pitcher than I am, but he needs some more practice.”

Brandy Halladay set up the tickets and the on-field passes for the McFaydens. They were on the field for 45 minutes and centre fielder Shane Victorino stopped by encouraging Isaac to heave balls on to the field during batting practice.

“Isaac gave me a high-five, as always, and stung my hand,” Halladay said. “Like last year when he came out of the first base dugout (at the Rogers Centre) over to our dugout.”

In 2008, Halladay was presented the fifth annual George Gross/Toronto Sun Sportsperson of the Year – the first pro athlete to win the honour. Legendary former editor Lou Clancy presented Halladay a $1,000 cheque last April before the Jays played the Detroit Tigers.

Halladay donated the cheque to the Isaac Foundation (theIsaacfoundation.com) and matched it himself.

After a big on-field hug on Saturday, Halladay squatted.

Isaac pitched to the gangly catcher in front of the Phillies dugout Saturday afternoon. That was Isaac’s favourite part of the visit, according to his father.

Isaac presented Halladay with his custom-made Isaac Foundation softball jersey with No. 32 on the back, the number Halladay wore with the Jays. When Isaac realized Halladay was wearing

No. 34 with the Phillies, he told his favourite player: “Just add two more.”

Isaac and Gabriel watched Halladay open and then read the card they made for him at the Sick Kids last week …

It was Halladay pitching … an orange.

After Halladay’s perfect game 1-0 win over the Florida Marlins, his e-mail in box was full with well wishers and people sending notes of congrats.

One e-mail stood out:

“Congratulations, enjoy everything that’s coming to you this evening.

From the McFaydens.”

Halladay answered the e-mail.

“We’ve been in contact with Brandy all the time and she often sends notes to Roy,” said McFayden, who had seats behind the Phillies dugout. “We don’t get to see him on TV for the Jays any more, but we listen to games on MLB network.”

Halladay also keeps in touch with Sean Clayton, who he met through the Make A Wish Foundation.

The Jays beat the Phillies 5-1 Saturday in the McFayden’s lone game in Phillie.

“Mostly, Isaac was impressed how hot it was during the game,” McFayden said.

While McFadyen lives in Campbellford, he teaches at Winston Churchill Public School in Kingston. In the efforts of full disclosure, it is a school we attended for two years and never once skipped class: Kindergarten (Miss Preston) and Grade 8

(Mr. Neil Joynt).

“Brandy and I believe in the Foundation,” Halladay said. “There is not really a lot of awareness for the illness.”

Deep friendship

In April last year we remember asking Isaac his favourite player at the St. Louis Bar and Grill before Isaac made his way across to the Rogers Centre.

Isaac stood tall, threw his neck back and as if howling at the moon, to let out a loud yell:

“Royyyy Holl-A-DAY!”

However, you pronounce the pitcher’s name, Halliday.

Halladay and Isaac have a deep friendship unchanged by the either the colour of a uniform or a city.

bob.elliott@sunmedia.ca

 

Little Man Has Doc's Heart

159620_laBonded by baseball, Halladay and McFadyen family hook up for a weekend to remember in Philadelphia

BOB ELLIOTT, TORONTO SUN

FIRST POSTED: | UPDATED: 

PHILADELPHIA – As usual when batting practice ended on Saturday the Philadelphia Phillies headed for the first base dugout.

Some couldn’t wait to get inside to the air-conditioned clubhouse.

Others headed to the video room for one final look at Jays pitcher Shaun Marcum and others wanted a Red Bull.

“You could see Roy Halladay walking across the infield, deep in his mode of concentration, and then he saw Isaac,” said Andrew McFadyen. “Roy’s face lit up … and so did Isaac’s.”

For the next 15 minutes Halladay stayed on the field with Isaac, 5, his younger brother Gabriel, four, and parents Ellen Buck-McFadyen and Andrew McFadyen, of Campbellford, Ont.

Halladay, his wife Brandy, and young Isaac have been pals for a few years since Isaac arrived at the Rogers Centre in Doc’s Box one weekend afternoon from Sick Kid’s Hospital.

You know about Halladay, his wins, his strikeouts, his complete game and bringing groups to Rogers Centre and Citizens Bank Park,

You may not know a lot about brave young Isaac.

At 18 months, in November of 2005, he was diagnosed with Maroteaux-Lamy Syndrome, or MPS VI. The unfair disease is caused by an enzyme deficiency, which stunts growth and causes joints to stiffen and heart valves to fail.

Isaac’s health is as good as it has ever been up to this point, according to his father, who says Isaac’s growth is progressing at a slower pace, but he has more mobility in his shoulders of late.

Treatments at Sick Kids, where he gets a weekly enzyme-replacement therapy, were moved up because of the G-20 Summit this past week. The treatments are Isaac’s lifeboat until a cure for his disease is discovered.

Isaac gets a synthetic version of the enzyme lacking in his blood.

The door-to-door process from Campbellford takes about 12 hours and comes in at a cost of about $500,000 to

1 million a year. The McFayden family credits Christina Blizzard of Sun for helping get government approval.

“I can’t speak more highly of Roy and Brandy,” Andrew McFadyen said from his downtown Philadelphia hotel.

“They are class acts, kind and caring. They truly go out of their way to make the world a better place for those around them. They use their position to give back and I think that is what makes the Halladays so amazing.”

The McFadyens arrived in town at 1 a.m. Saturday making the 81/2 hour drive from Kingston where McFayden teaches, missing Halladay’s seven scoreless innings for the win Friday. McFadyen was on a class trip Friday and could not get away earlier to get to Philadelphia in time for Halladay’s start.

And early Sunday morn they were on the road home.

In the Phillies clubhouse on Sunday, Halladay walked past us with the purposeful stride.

“Do you have a minute?”

“Nope, I’m way behind, running late, sorry, no time,” Halladay said over his left shoulder without breaking stride.

“Ah, it’s about Isaac.”

Halladay put on the breaks like a runner leading off first who sees a line drive at the shortstop’s head.

“It was nice to see him for the first time since last season and he looked great, which is a real good sign,” Halladay said. “He’s always been energetic, he told me he was a better pitcher than I am, but he needs some more practice.”

Brandy Halladay set up the tickets and the on-field passes for the McFaydens. They were on the field for 45 minutes and centre fielder Shane Victorino stopped by encouraging Isaac to heave balls on to the field during batting practice.

“Isaac gave me a high-five, as always, and stung my hand,” Halladay said. “Like last year when he came out of the first base dugout (at the Rogers Centre) over to our dugout.”

In 2008, Halladay was presented the fifth annual George Gross/Toronto Sun Sportsperson of the Year – the first pro athlete to win the honour. Legendary former editor Lou Clancy presented Halladay a $1,000 cheque last April before the Jays played the Detroit Tigers.

Halladay donated the cheque to the Isaac Foundation (theIsaacfoundation.com) and matched it himself.

After a big on-field hug on Saturday, Halladay squatted.

Isaac pitched to the gangly catcher in front of the Phillies dugout Saturday afternoon. That was Isaac’s favourite part of the visit, according to his father.

Isaac presented Halladay with his custom-made Isaac Foundation softball jersey with No. 32 on the back, the number Halladay wore with the Jays. When Isaac realized Halladay was wearing

No. 34 with the Phillies, he told his favourite player: “Just add two more.”

Isaac and Gabriel watched Halladay open and then read the card they made for him at the Sick Kids last week …

It was Halladay pitching … an orange.

After Halladay’s perfect game 1-0 win over the Florida Marlins, his e-mail in box was full with well wishers and people sending notes of congrats.

One e-mail stood out:

“Congratulations, enjoy everything that’s coming to you this evening.

From the McFaydens.”

Halladay answered the e-mail.

“We’ve been in contact with Brandy all the time and she often sends notes to Roy,” said McFayden, who had seats behind the Phillies dugout. “We don’t get to see him on TV for the Jays any more, but we listen to games on MLB network.”

Halladay also keeps in touch with Sean Clayton, who he met through the Make A Wish Foundation.

The Jays beat the Phillies 5-1 Saturday in the McFayden’s lone game in Phillie.

“Mostly, Isaac was impressed how hot it was during the game,” McFayden said.

While McFadyen lives in Campbellford, he teaches at Winston Churchill Public School in Kingston. In the efforts of full disclosure, it is a school we attended for two years and never once skipped class: Kindergarten (Miss Preston) and Grade 8

(Mr. Neil Joynt).

“Brandy and I believe in the Foundation,” Halladay said. “There is not really a lot of awareness for the illness.”

Deep friendship

In April last year we remember asking Isaac his favourite player at the St. Louis Bar and Grill before Isaac made his way across to the Rogers Centre.

Isaac stood tall, threw his neck back and as if howling at the moon, to let out a loud yell:

“Royyyy Holl-A-DAY!”

However, you pronounce the pitcher’s name, Halliday.

Halladay and Isaac have a deep friendship unchanged by the either the colour of a uniform or a city.

bob.elliott@sunmedia.ca

 

John Mayer Isn’t Quite The Jerk He Seems To Be

020310_john_mayer_544_spl132289_004Tue, February 16, 2010 7:45pm EDT by 

Despite his recent derogatory remarks, John Mayer takes the time to reach out to a sick child and family in need. Do you think he deserves a break from all the criticism?

John Mayer has gotten a lot of deserved flack lately for dropping the n-word and making un-gentlemanly remarks about ex-girlfriends Jennifer Aniston and Jessica Simpson in Playboymagazine, but the loose-lipped rocker does have one fan, who says John is a stand-up guy for spending time with his ailing son, Limelife reports.

Five-year-old Isaac McFadyen is battling a rare enzyme deficiency known as MPS VI, and for the past two years, John, 32, has been working intimately with Isaac and his charity, the Isaac Foundation, to find a cure for the disease.

Isaac’s dad, Andrew, is now defending the rocker via his blog. “I know he has said things that turn people off. I know he’s said things that make him sound like someone you would never want your children around — ever. But I also know the person that he truly is and the good things he tries to accomplish with the celebrity status he’s achieved,” Andrew wrote Feb. 11.

He added, “A few minutes ago I asked Isaac to tell me three words he would use to describe John. He responded ‘Nice, friendable, and loveable.’ Print that bloggers, and give John his fair shake.”

It’s easy to see why Andrew and Isaac are fans of Mayer the Player: they see a different side of him from the rest of the world (call it his sensitive side, if you will). John not only chatted with Isaac backstage before his Toronto concert, but gave the sick 5-year-old a Valentine’s Day show and an on-stage shout-out (see video).

After watching the video, even we have to admit seeing John vulnerable was pretty endearing. Even though he says outrageously offensive things and seems to have no filter, do you think he’s a good guy at heart? Does watching this video make you — sort of — forgive him?

John Mayer Isn't Quite The Jerk He Seems To Be

020310_john_mayer_544_spl132289_004Tue, February 16, 2010 7:45pm EDT by 

Despite his recent derogatory remarks, John Mayer takes the time to reach out to a sick child and family in need. Do you think he deserves a break from all the criticism?

John Mayer has gotten a lot of deserved flack lately for dropping the n-word and making un-gentlemanly remarks about ex-girlfriends Jennifer Aniston and Jessica Simpson in Playboymagazine, but the loose-lipped rocker does have one fan, who says John is a stand-up guy for spending time with his ailing son, Limelife reports.

Five-year-old Isaac McFadyen is battling a rare enzyme deficiency known as MPS VI, and for the past two years, John, 32, has been working intimately with Isaac and his charity, the Isaac Foundation, to find a cure for the disease.

Isaac’s dad, Andrew, is now defending the rocker via his blog. “I know he has said things that turn people off. I know he’s said things that make him sound like someone you would never want your children around — ever. But I also know the person that he truly is and the good things he tries to accomplish with the celebrity status he’s achieved,” Andrew wrote Feb. 11.

He added, “A few minutes ago I asked Isaac to tell me three words he would use to describe John. He responded ‘Nice, friendable, and loveable.’ Print that bloggers, and give John his fair shake.”

It’s easy to see why Andrew and Isaac are fans of Mayer the Player: they see a different side of him from the rest of the world (call it his sensitive side, if you will). John not only chatted with Isaac backstage before his Toronto concert, but gave the sick 5-year-old a Valentine’s Day show and an on-stage shout-out (see video).

After watching the video, even we have to admit seeing John vulnerable was pretty endearing. Even though he says outrageously offensive things and seems to have no filter, do you think he’s a good guy at heart? Does watching this video make you — sort of — forgive him?

John Mayer Receives Support From Charity

 

Isaac Foundation blogs in defense of the singer, while Vivid Entertainment offers him a screenwriting gig.

 

MTV.com – By Jocelyn Vena (@jocelyn1212

281x211Last week, John Mayer caused an uproar with controversial, racially charged comments he made in an interview with Playboy magazine. But amid the statements of outrage — and his own apologies — one group is coming to the Grammy-winning singer/songwriter’s defense: the Isaac Foundation, a charity for which Mayer has helped raise money.

“I thought I would take to our blog to write a quick defense of John Mayer, someone that I have grown to respect for the kind, caring, and compassionate person that he truly is,” reads a message from Andrew McFadyen, the founder of the organization dedicated to curing MPS VI, a rare, progressive disease in children caused by an enzyme deficiency. Mayer has reportedly worked with the charity since the summer of 2008 and has kept in touch with Isaac McFadyen (the child who inspired the organization) and his family.

“I know he has said things that turn people off. I know he’s said things that make him sound like someone you would never want your children around — ever. But I also know the person that he truly is and the good things he tries to accomplish with the celebrity status he’s achieved,” the message on the site reads. “A few minutes ago, I asked Isaac to tell me three words he would use to describe John, and he responded, ‘Nice, Friendable, and Loveable.’ Print that, bloggers, and give John his fair shake.”

Mayer invited the 5-year-old Isaac and his family to his show in Toronto on Sunday, which followed his tour kickoff in Detroit on Saturday. After visiting with the McFadyens, the singer broke his self-imposed Twitter hiatus to link to the Isaac Foundation site.

“Thank You Toronto,” Mayer tweeted. “Here is my friend Isaac I was telling you about. He made me the Valentine card tonight.”

Mayer can also be seen in a video from Sunday’s show thanking Isaac for the Valentine onstage. “Sometimes you get beautiful things out of little, tiny mistakes,” the singer said.

Over the weekend, Mayer also got support from another camp: porn production company Vivid Entertainment, which offered him a job penning scripts.

“We read about your interest in porn in the current issue of Playboymagazine,” founder/co-chair Steven Hirsch said in a letter posted onTMZ.com. “When we learned that you make up backstories in your mind and that your ‘biggest dream is to write pornography,’ we decided we’d like to talk to you about doing just that and possibly directing as well.”

According to the New York Daily News, Mayer’s publicist said he wouldn’t be accepting the offer.

Do you think John Mayer’s charity work makes up for his big mouth? Should he take Vivid’s offer and quit his day job? Sound off below!

Charity Defends John Mayer as “Kind, Caring”

020310_john_mayer_544_spl132289_004By CATHERINE DONALDSON-EVANS – PEOPLE MAGAZINE

02/15/2010 at 01:15 PM EST

After getting hammered for his Playboy interview,John Mayer has finally found a friend.

The Isaac Foundation, which raises money for children with a rare enzyme deficiency known as MPS VI, says in its blog that the 32-year-old singer is a “kind, caring and compassionate person” they have come to “respect.”

“I don’t care what Playboy magazine writes about the man, and I don’t care what John says to the journalists that write what they do about him,” writes the group’s founder, Andrew McFadyen. “In America, it’s all part of the game.”

Mayer has donated generously to the group and spent time with Isaac, the little boy with MPS VI, and his father McFadyen. Mayer met Isaac when the boy was 4 years old before a concert in Toronto in July of 2008. Mayer blogged that the little boy was “one of the coolest kids I’ve ever met.”

Keep up with John Mayer in the pages of PEOPLE Magazine by subscribing now.

“I know he has said things that turn people off. I know he’s said things that make him sound like someone you would never want your children around – ever,” McFadyen writes. “But I also know the person that he truly is and the good things he tries to accomplish with the celebrity status he’s achieved.”

Mayer has given Isaac’s family love and a sense of “hope” that there is a cure for the disease, McFadyen says.

“Write what you want about John, think what you will, but before you hand down your verdict on what kind of person he really is, please consider the good he has done in his life.”

In the fallout since his interview, Mayer had stopped his typically incessant Tweeting – but he recently broke his Twitter silence to link to The Isaac Foundation’s Web site.

See what other readers have to say about this story – or leave a comment of your own

Charity Defends John Mayer as "Kind, Caring"

020310_john_mayer_544_spl132289_004By CATHERINE DONALDSON-EVANS – PEOPLE MAGAZINE

02/15/2010 at 01:15 PM EST

After getting hammered for his Playboy interview,John Mayer has finally found a friend.

The Isaac Foundation, which raises money for children with a rare enzyme deficiency known as MPS VI, says in its blog that the 32-year-old singer is a “kind, caring and compassionate person” they have come to “respect.”

“I don’t care what Playboy magazine writes about the man, and I don’t care what John says to the journalists that write what they do about him,” writes the group’s founder, Andrew McFadyen. “In America, it’s all part of the game.”

Mayer has donated generously to the group and spent time with Isaac, the little boy with MPS VI, and his father McFadyen. Mayer met Isaac when the boy was 4 years old before a concert in Toronto in July of 2008. Mayer blogged that the little boy was “one of the coolest kids I’ve ever met.”

Keep up with John Mayer in the pages of PEOPLE Magazine by subscribing now.

“I know he has said things that turn people off. I know he’s said things that make him sound like someone you would never want your children around – ever,” McFadyen writes. “But I also know the person that he truly is and the good things he tries to accomplish with the celebrity status he’s achieved.”

Mayer has given Isaac’s family love and a sense of “hope” that there is a cure for the disease, McFadyen says.

“Write what you want about John, think what you will, but before you hand down your verdict on what kind of person he really is, please consider the good he has done in his life.”

In the fallout since his interview, Mayer had stopped his typically incessant Tweeting – but he recently broke his Twitter silence to link to The Isaac Foundation’s Web site.

See what other readers have to say about this story – or leave a comment of your own

Kent Students Jump Rope For One Of Their Own

By Mark Hoult, Community Press

Campbellford – Last week the students of Kent Public School handed over a cheque for $4,271 for the Isaac Foundation. The money was raised by students who participated in last month’s Jump Rope Idol contest, an event held each year at the school to promote physical activity and to raise funds for worthy causes.

Last year the event raised money for the Heart and Stroke Foundation. But this time the school decided to help one of their own, Isaac McFadyen and his foundation, said his junior kindergarten teacher Rhonda Rutherford, who organized the Jump Rope Idol, along with teacher Marlene Cole.

Isaac, 5, thanked his fellow students, in presenting the school with a plaque of appreciation, which reads: “With sincere thanks and appreciation, presented to Kent Public School in recognition and support of the Isaac Foundation.”

Rutherford said students responded enthusiastically to the competition and could be seen in the school yard practising their routines in the weeks leading up to the event. And the community responded generously by sponsoring the students, while local businesses donated food certificates, she said.

During his first year at Kent Isaac has become popular with his classmates and has even formed warm relationships with older students, Rutherford said, noting that he also enjoys the company of adults. And in the classroom he’s a joy to teach.

“Isaac is a fabulous student. He always challenges me every day, and comes in first thing in the morning and says, ‘Good morning, Miss Rutherford,’ bright and sunny. And I have to stay one step ahead of him; he’s always got new words for me.”

Five-Year-Old Isaac Making Friends With The Stars

John Campbell

Trent Hills – How many five-year-olds can say they’ve thrown the ceremonial first pitch at a Blue Jay game the night the team’s ace pitcher Roy Halladay is honoured as Sportsperson of the Year, or shared the stage with international pop star John Mayer at a concert in Toronto?

Isaac McFadyen has.

He’s unique in one other respect and that’s how Mayer, Halladay and his wife Brandy came to know him. Isaac is the only one in Ontario with a rare disease known as MPS VI, and is just one of three known cases in Canada. Maroteaux-Lamy Syndrome is caused by an enzyme deficiency that stiffens the joints, stunts growth, damages the heart and hips, and causes clouding of the cornea. It also shortens a person’s lifespan. There is no cure.

It wasn’t long after their son was diagnosed at 18 months of age in October 2005 that Isaac’s parents, Andrew and Ellen, set up The Isaac Foundation to fund treatment and innovative research projects. In three years it’s handed out $180,000 in grants using money raised through the donations of individuals and a host of events, the biggest being a golf tournament it holds annually. The fourth one was held last weekend in Kingston, where Andrew is a Grade 7/8 teacher.

Recently, the foundation committed to a third year of funding for research at Mount Sinai in New York for the development of a therapy to relieve chronic inflammation in the joints of individuals with MPS VI. Another research project the foundation is funding involves “chemical chaperoning” in which a drug administered orally will mimic the effects of the enzyme Isaac lacks.

“It’s probably as close to a cure as we may find over the next 10 years,” Andrew said

Until one is found, Isaac must undergo enzyme replacement therapy once a week at Hospital for Sick Children in Toronto. He’s also had several operations and what would be routine for most children, such as the removal of tonsils, is anything but for Isaac. Any time he is anesthetized “is a major, major issue,” because of his breathing problems, Andrew said.

Last year he underwent surgery for his spinal cord which had become so compressed that “any type of bump or fall could have paralyzed him.”

Isaac, who’s bubbly and outgoing, is a far different boy from what his parents feared he might be at his age when they were told the disease he had. The outlook was not good but dread has given way to hope.

Isaac’s last six months have been his “healthiest,” his parents say.

He runs, climbs, plays games – “doing all the things that other kids do,” Ellen said. “I never thought at the age of five that he’d be doing this well.”

His breathing has improved and he’s sleeping better as a result. He’s also growing, albeit “at a slowed-down rate,” Andrew said.

“In most ways he’s quite normal,” Ellen said, and “fits in really well” with other children at Kent Public School where he attends junior kindergarten.

The couple can thank the Ontario government for Isaac’s doing well. It’s footing the bill for his enzyme replacement – the cost is staggering, running between $300,000 and $1 million a year — but it took the prodding of Opposition health critic Elizabeth Witmer to help make it happen.

The couple lobbied the government for eight months, backed by Witmer, and their cause made the front pages of Toronto newspapers and was covered extensively by television and radio stations.

Their campaign ended when then-health minister George Smitherman announced in July 2006 that the province would pick up the tab for Isaac’s therapy.

Andrew is deeply grateful that Witmer fought on the couple’s behalf and he regularly provides her with reports of “firsts” by Isaac, such as his first soccer game, his first report card.

“I’ll do that for his entire life,” Andrew said. From his graduation from public school to his graduation from high school, he’ll keep her updated. And “when we make an announcement that we found a cure … I want her there.”

Andrew also praises the Liberal government for finally agreeing to cover the costs of Isaac`s therapy. “They saved his life, and it’s not often a government can see those direct results that quickly and that unequivocally,” Andrew said.

The support their fundraising has received from two bona fide stars in sports and entertainment has been immensely helpful.

“Having somebody like Roy Halladay and John Mayer jump onboard is really important to us,” he said.

The night Halladay got his award, he received a $1,000 cheque which he matched and turned over to the foundation. He subsequently donated 16 tickets to his skybox at the Rogers Centre to be auctioned off last weekend, and vowed that he and his wife “were going to be in this for the long haul” in their support of the Isaac Foundation.

And after Mayer, “one of the biggest pop musicians in the world,” wrote about meeting Isaac on his blog, “we had 30,000 hits on our website in a couple of weeks,” Andrew said. Their encounter also made the pages of a celebrity magazine.

He and Ellen pledged from the get-go that the foundation would operate with minimal overhead and move quickly in getting grants out the door.

“We’re so proud of the fact that we can say that 98 to 99 per cent of all money that comes in goes directly back out to research,” Andrew said.

Even though this has been “the healthiest six months” Isaac has enjoyed, the couple remain mindful that things could change at any time.

“It’s always wait and see,” Ellen said. Every day Isaac is able to enjoy life like any other kid his age, “I am able to live in the moment … That’s how I cope,” she said. “I don’t look too far down the road.”

“I look at where we could be still and it’s very difficult,” Andrew admitted. His emotions “bounce back and forth,” and it’s on those hour-long drives to Kingston or while sitting in an empty classroom that he finds himself crying. But as soon as he gets home and sees Isaac and his younger brother Gabriel at play, it lifts his spirits.

“I get regrounded,” he said.

To learn more about the Isaac Foundation, visit www.theisaacfoundation.com.

Jays Pitcher Stands Behind A Good Cause

isaac, gabe, and halladayBOB ELLIOTT, SUN MEDIA

Roy Halladay has received and given a few high fives over his career. They usually come after pitching yet another complete game, a 10-inning shutout, receiving the Cy Young award or just maybe that two-hit night at Dodger Stadium in 2007.

They were accomplishments we have come to expect from the former first-round draft pick.

The high five Halladay received, as he leaned out of the third base dugout, extending his palm to his old pal Isaac McFadyen at 6:43 last night, was likely as satisfying as any he’s had in a Blue Jays uniform.

Halladay had not seen Issac since last season when Isaac visited Doc’s Box, a skybox where Halladay and his wife, Brandy, entertain children and their families.

The Jays ace was named the fifth annual George Gross/ Toronto Sun Sportsperson of the Year in December and before the Detroit Tigers played the Jays, editor-in-chief Lou Clancy presented Halladay a $1,000 cheque last night.

Halladay donated it to the Isaac Foundation ( theisaacfoundation.com) and then Halladay matched the offer himself.

“My wife Brandy and I believe in the Foundation,” Halladay said. “It hasn’t gotten a lot of support and there’s not a lot of awareness for the illness.”

Isaac was born 4 1/2 years ago. At 18 months, in November of 2005, he was diagnosed with Maroteaux-Lamy Syndrome, or MPS VI. The disease is caused by an enzyme deficiency which stunts growth and causes joints to stiffen and heart valves to fail.

“Without proper medicine his hands will (turn into a) claw and corneas will cloud,” said Isaac’s father Andrew McFadyen seated at the St. Louis Bar and Grill, across the street from the Rogers Centre.

“Isaac has already had an operation when his spinal cord compressed,” said McFadyen.

Isaac’s brother, Gabriel, three, shared the table — when not crawling under it.

Now, Isaac is taking the synthetic enzyme Nagalazyme, which costs between $350,000 and $1 million a year. While approved in the United States and the United Kingdom and by the Canadian government, the Ontario government initially refused to approve it.

“Christina Blizzard of the Toronto Sun really fought for us, helping us get approval,” said McFadyen. “Only three people in Canada have this disease so there were not enough children to test. This is now our life boat.”

Later the gang — Isaac and Gabriel, with mother and father Ellen Buck-McFadyen and Andrew McFadyen, plus grand parents Paula and Wayne Buck plus Ellen Dabbs and friends — walked to the concrete building across the street and out onto the carpet.

B e f o re the game a video ( youtube.com/watch? v=dcAQWUZV4nc) was shown on the Jumbotron and Halladay scooped his pal Isaac up like a comebacker with men on first and second and pointed to centre. The two pals watched Isaac on the giant screen.

Halladay invites children from the Sick Kids Hospital once a month to his skybox, which is where Brandy and Roy met Isaac a few years back.

“We hope to have the box nine or 10 times this season,” said Halladay, who visited Sick Kids the day after the 2008 season ended. “We went into a few treatment rooms and would like to get more directly involved at the hospital.”

Singer John Mayer and Halladay are helping raising funds to MPS VI research.

“This allows us to make a difference,” McFadyen said. “Roy Halladay is respected in Toronto, in Ontario and across Canada. He’s a great father and a role model for kids across the country.”

Then the proud father told of how excited his son Isaac gets when he sees Halladay on TV.

McFadyen lives i n Campbellford, Ont., and teaches grade 8 at Sir Winston Churchill Public School in Kingston — where I managed to pass both kindergarten (Miss Preston) and grade 8 (Mr. Joynt).

“I hope fans understand what a treasurer they have in Halladay,” McFadyen said. “I know our family understands.”

After Isaac threw his Campbellford strike with the ceremonial first pitch he sprinted to Halladay and gave him another high five, which looked like it had the same force as the ones Brad Fullmer used to deliver after a home run.

Who is your favorite ball player Isaac?

“Roy Holl-A-DAY!” said Isaac with a big smile.

A lot of Jays fans would give the same answer.

bob.elliott@sunmedia.ca

Doc Delivers As Role Model

-661081_ORIGINALFrom The Toronto Sun – December 2008

The trophies sit alongside a stairway inside the Halladay household.

The 2003 American League Cy Young Award presented to … Roy Halladay.

In front of it stands a silver horse, the American Quarter Horse Association Rookie of the Year trophy presented to … Brandy Halladay.

The Halladay house of honour in Odessa, Fla., now has another award.

Roy Halladay, the Blue Jays’ ace right-hander, is the winner of the fifth annual George Gross/Toronto Sun Sportsperson of the Year award. The award goes to the athlete judged to have had the most impact on the Toronto sports scene in 2008. A $1,000 donation will be made in Halladay’s name to the charity of his choice.

Halladay was selected over nominees Mats Sundin of the Maple Leafs, Chris Bosh of the Raptors, Daniel Nestor, a doubles winner at Wimbledon, Don Cherry of Hockey Night in Canada and Jays manager Cito Gaston.

Previous winners are Mike (Pinball) Clemons of the Argos; the Toronto Rock lacrosse team; Cassie Campbell, captain of Canada’s gold-medal winning Olympic women’s hockey team; and Bryan Colangelo, Raptors general manager.

“Wow, it’s good company. Both the past winners and the people in contention this year, have all done a lot for sports in Toronto and Canada,” Halladay said of the list of names. “Obviously, getting picked is an honour. It’s nice to be associated with all those names.”

Halladay has been a mainstay of the Jays for a decade, since bursting into prominence as a 21-year-old in 1998.

In his second career start, he took a no-hitter into the ninth inning against the Detroit Tigers.

That game was no fluke. He won his Cy Young five years later and, this past season, was a 20-game winner for the second time. A workaholic on a “don’t stop until you drop” program, his fitness enabled him to throw 246 innings and finish as the runner-up in Cy Young voting to Cleveland Indians lefty Cliff Lee.

Halladay’s rise has not come without its setbacks. He has a career record of 131-66 — 113-49 since he was demoted from the major leagues back to class-A Dunedin in the spring of 2001 to re-invent himself as a pitcher.

“A lot of things changed for me then,” Halladay said.

But it is not just on the ball field where the 6-foot-6, 225-pound star shines. He and his wife Brandy are known for their involvement in the community, and especially their work with children. If there is a role model in sports definitely worth emulating, Halladay is your man.

“I try to be as helpful as I can, be a good person,” Halladay said this week when informed of his most recent accolade. “I feel it is more important to be a good person than a good pitcher. I had to get to the point where I liked the person I was, regardless of what happened on the field.

“You play for a short period, substance is more important. It’s more important that you are a good father, a good husband and a good person in the community. That really defines who you are.”

Besides pitching every fifth day and trying to go nine innings, Halladay and his wife entertain 10 to 15 children from the Toronto Sick Kids Hospital in a Rogers Centre Skybox on Sundays.

“We go up, say hi, take pictures,” Halladay said. “We’re trying to move forward in other ways. They’ve upgraded and updated a lot of rooms at the hospital. Some still need more, we’re trying to improve some of their treatment rooms.”

Halladay went 20-11 in 33 starts this past season, his 11th with the Jays — and first since age 12 without mentor Bus Campbell. Spring training 2008 began with a flight from Tampa to Denver for Campbell’s funeral.

For years, Campbell, having charted pitches after watching on the satellite dish that Halladay had purchased for him, would call his former pupil.

“This year was different, I was used to being able to talk to him,” Halladay said. “With the people we had in Toronto (pitching coach Brad Arnsberg), unless it got drastic, we were pretty good at fixing things.”

Halladay fits the sexy tag of franchise player, despite talk that the rebuilding Jays should deal him for three or four players.

“Playing my whole career with the same organization is something I’d like to do, something everyone would like to do,” Halladay said. “The hard thing is it takes two parties to agree on it.”

Halladay is humble, as one friend says: “Humble enough to be mistaken for a Canadian.”

“I don’t need much,” he answers when asked if he gets the proper credit. “People in Toronto are grateful — any time I run into someone they are very complimentary.”

Growing up in Arvada, Colo., one of Halladay’s role models was two-time National League MVP Dale Murphy of the Atlanta Braves.

“I could not tell you any of Dale Murphy’s stats but I know how great a man he was, what a family man, a father and what he did in the community,” Halladay said.

So, how is Halladay a great father to his sons Braden, 8, and Ryan, 4?

“On the day they move out of our house, I want them to know that they got the best from me; that it wasn’t about me, it was about them,” the proud papa said. “I’d rather be their friend first.”

And how is he a great husband, aside from allowing Brandy to take a turn at the TV remote control when his favourite show, Survivor, is playing?

“My wife has to take the back seat most of the season and put off some of her hobbies. It’s easy, sometimes, in baseball, where everyone is talking about you, to forget,” Halladay said. “I try to do more for her during the winter and put baseball on the back-burner.”

Brandy has three quarter-horses — Colby, Mutt and Certs — boarded 15 minutes away at Showcase Farm in Lutz, Fla. She competes in English and Western riding disciplines at competitions around the Tampa Bay area.

Halladay’s off-season support begins with him taking the kids off mom’s hands on competition weekends.

A year ago, Brandy broke through with four wins at the Tampa Fairgrounds. The five judges gave their results with riders atop horses inside the ring, as husbands, children and boosters nervously waited.

“It was cool,” said Halladay, who stood and cheered when Brandy got her first first-place finish. “It took her a while before there was a seventh (out of a field of 45) or an eighth. Then, that one weekend, Brandy had four (firsts).”

Brandy didn’t receive a phone call from the AQHA secretary when she claimed the rookie of the year — as Halladay did from Baseball Writers’ Association of America secretary Jack O’Connell when he won his Cy Young.

“They base (his wife’s award) on a point system and put it on the website, not a lot fanfare,” Halladay said.

Provided Colby’s tendons are 100%, Brandy will ride at competitions in Florida and South Carolina next month. She also hopes to make the All-American Quarter-Horse Congress in Columbus, Ohio in 2010.

With husband supporting wife, with wife supporting husband, this is an award-inning household.

Braden Halladay, a ferocious 58-pound nose tackle, played for the East Lake Eagles in the Little League Super Bowl. Games are played at 8 a.m., so that means a 6:30 weigh-in for the under-60 pound division.

The mighty Eagles got off the final play with nine seconds remaining and scored the only touchdown with zero time on the clock to beat the Countryside Cougars 6-0.

“The parents went crazy at the end, not me,” said Halladay, who cheered on the Eagles.

East Lake was given a trophy and all the players received a medal.

And where is Braden’s medal now, hanging over the stallion’s head alongside the stairway?

“Actually,” Doc said, “it is.”