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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Oh – JM signed guitar for our Gala silent auction :-)

Sticky Post By mcfadyena On 15 August, 2013

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Oh - JM signed guitar for our Gala silent auction :-)

Oh – JM signed guitar for our Gala silent auction 🙂 August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

@mrjcmayer – The boys were thrilled to see their guitar strap on stage most of the night.

Sticky Post By mcfadyena On 15 August, 2013

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@mrjcmayer - The boys were thrilled to see their guitar strap on stage most of the night.

@mrjcmayer – The boys were thrilled to see their guitar strap on stage most of the night. August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Giving a gift of thanks – new guitar strap :-)

Sticky Post By mcfadyena On 15 August, 2013

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Giving a gift of thanks - new guitar strap :-)

Giving a gift of thanks – new guitar strap 🙂 August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Fun together.

Sticky Post By mcfadyena On 15 August, 2013

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Fun together.

Fun together. August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

"I'm a little lost at sea, I'm a little birdie in a PICKLE TREE". A cute moment with Isaac and @mrjcmayer

Sticky Post By mcfadyena On 15 August, 2013

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"I'm a little lost at sea, I'm a little birdie in a PICKLE TREE". A cute moment with Isaac and @mrjcmayer

"I'm a little lost at sea, I'm a little birdie in a PICKLE TREE". A cute moment with Isaac and @mrjcmayer August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

The boys with their hero, John Mayer :-)

Sticky Post By mcfadyena On 15 August, 2013

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The boys with their hero, John Mayer :-)

The boys with their hero, John Mayer 🙂 August 15th, 2013mcfadyena
14 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Long hospital day + late night with @mrjcmayer = 1 tired boy :-)

Sticky Post By mcfadyena On 14 August, 2013

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Long hospital day + late night with @mrjcmayer = 1 tired boy :-)

Long hospital day + late night with @mrjcmayer = 1 tired boy 🙂 August 14th, 2013mcfadyena
14 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

The boys with one of the kindest people on the planet, @mrjcmayer #ParadiseValley

Sticky Post By mcfadyena On 14 August, 2013

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The boys with one of the kindest people on the planet, @mrjcmayer #ParadiseValley

The boys with one of the kindest people on the planet, @mrjcmayer #ParadiseValley August 14th, 2013mcfadyena
14 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

#ParadiseValley Awesome…

Sticky Post By mcfadyena On 14 August, 2013

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#ParadiseValley Awesome...

#ParadiseValley Awesome… August 14th, 2013mcfadyena
14 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac and Gabe's card for @mrjcmayer. So funny. At hospital now – show later!

Sticky Post By mcfadyena On 14 August, 2013

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Isaac and Gabe's card for @mrjcmayer. So funny. At hospital now - show later!

Isaac and Gabe's card for @mrjcmayer. So funny. At hospital now – show later! August 14th, 2013mcfadyena
12 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Gabriel in the CTV news studio :-)

Sticky Post By mcfadyena On 12 August, 2013

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Gabriel in the CTV news studio :-)

Gabriel in the CTV news studio 🙂 August 12th, 2013mcfadyena

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