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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Dinner after an incredible day. Playing with their new Puffle Friends :-)

Sticky Post By mcfadyena On 21 August, 2013

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Dinner after an incredible day. Playing with their new Puffle Friends :-)

Dinner after an incredible day. Playing with their new Puffle Friends 🙂 August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

An amazing visit with CP creator Lane Merrifield.

Sticky Post By mcfadyena On 21 August, 2013

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An amazing visit with CP creator Lane Merrifield.

An amazing visit with CP creator Lane Merrifield. August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Lunch with Lane Merrifield at Club Penguin :-)

Sticky Post By mcfadyena On 21 August, 2013

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Lunch with Lane Merrifield at Club Penguin :-)

Lunch with Lane Merrifield at Club Penguin 🙂 August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Moderating!

Sticky Post By mcfadyena On 21 August, 2013

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Moderating!

Moderating! August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Moderating at Club Penguin. They are SO excited!

Sticky Post By mcfadyena On 21 August, 2013

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Moderating at Club Penguin. They are SO excited!

Moderating at Club Penguin. They are SO excited! August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Beyond Excited…my heart is melting :-)

Sticky Post By mcfadyena On 21 August, 2013

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Beyond Excited...my heart is melting :-)

Beyond Excited…my heart is melting 🙂 August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Gabe just dressed his penguin up like @mrjcmayer. Welcome to Club Penguin, John :-)

Sticky Post By mcfadyena On 21 August, 2013

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Gabe just dressed his penguin up like @mrjcmayer. Welcome to Club Penguin, John :-)

Gabe just dressed his penguin up like @mrjcmayer. Welcome to Club Penguin, John 🙂 August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Final play of Club Penguin before the boys work there for the day today! They are SO EXCITED!

Sticky Post By mcfadyena On 21 August, 2013

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Final play of Club Penguin before the boys work there for the day today!  They are SO EXCITED!

Final play of Club Penguin before the boys work there for the day today! They are SO EXCITED! August 21st, 2013mcfadyena
20 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Ready to raft!

Sticky Post By mcfadyena On 20 August, 2013

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Ready to raft!

Ready to raft! August 20th, 2013mcfadyena
20 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Magical fun with the staff at Glacier Raft Company before we hit the water.

Sticky Post By mcfadyena On 20 August, 2013

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Magical fun with the staff at Glacier Raft Company before we hit the water.

Magical fun with the staff at Glacier Raft Company before we hit the water. August 20th, 2013mcfadyena
19 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

These two make me smile :-)

Sticky Post By mcfadyena On 19 August, 2013

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These two make me smile :-)

These two make me smile 🙂 August 19th, 2013mcfadyena

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