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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

29 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope

Sticky Post By mcfadyena On 29 July, 2012

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Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope

Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope July 29th, 2012mcfadyena
28 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

3 MPS VI kids together for the first time ever in Canada! #hope

Sticky Post By mcfadyena On 28 July, 2012

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3 MPS VI kids together for the first time ever in Canada! #hope

3 MPS VI kids together for the first time ever in Canada! #hope July 28th, 2012mcfadyena
18 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Matching Hair Cuts Today :-)

Sticky Post By mcfadyena On 18 July, 2012

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Matching Hair Cuts Today :-)

Matching Hair Cuts Today 🙂 July 18th, 2012mcfadyena
17 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Celebration after a long, successful, day. Can't wait to share :-) #ProjectOneMillion

Sticky Post By mcfadyena On 17 July, 2012

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Celebration after a long, successful, day. Can't wait to share :-) #ProjectOneMillion

Celebration after a long, successful, day. Can't wait to share 🙂 #ProjectOneMillion July 17th, 2012mcfadyena
15 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Pool Fun!

Sticky Post By mcfadyena On 15 July, 2012

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Pool Fun!

Pool Fun! July 15th, 2012mcfadyena
14 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

#Precious.

Sticky Post By mcfadyena On 14 July, 2012

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#Precious.

#Precious. July 14th, 2012mcfadyena
14 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

A few young runners for Isaac (and his classmates!).

Sticky Post By mcfadyena On 14 July, 2012

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A few young runners for Isaac (and his classmates!).

A few young runners for Isaac (and his classmates!). July 14th, 2012mcfadyena
13 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Desert Pizza – The Boys' Creation!

Sticky Post By mcfadyena On 13 July, 2012

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Desert Pizza - The Boys' Creation!

Desert Pizza – The Boys' Creation! July 13th, 2012mcfadyena
13 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My Precious Angels!

Sticky Post By mcfadyena On 13 July, 2012

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My Precious Angels!

My Precious Angels! July 13th, 2012mcfadyena
12 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Glass of Red with my wife by the garden. #aroundtoliving

Sticky Post By mcfadyena On 12 July, 2012

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Glass of Red with my wife by the garden. #aroundtoliving

Glass of Red with my wife by the garden. #aroundtoliving July 12th, 2012mcfadyena
10 Jul 2012
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Board Games!

Sticky Post By mcfadyena On 10 July, 2012

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Board Games!

Board Games! July 10th, 2012mcfadyena

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