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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

17 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Crazy Kids, with their "stage director" Isaac!

Sticky Post By mcfadyena On 17 August, 2012

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Crazy Kids, with their "stage director" Isaac!

Crazy Kids, with their "stage director" Isaac! August 17th, 2012mcfadyena
17 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Crazy Kids, with their "stage director" Isaac!

Sticky Post By mcfadyena On 17 August, 2012

Shared from our Instagram Feed.
Crazy Kids, with their "stage director" Isaac!

Crazy Kids, with their "stage director" Isaac! August 17th, 2012mcfadyena
14 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My little independent boy!

Sticky Post By mcfadyena On 14 August, 2012

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My little independent boy!

My little independent boy! August 14th, 2012mcfadyena
06 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

A worthwhile break in the day!

Sticky Post By mcfadyena On 6 August, 2012

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A worthwhile break in the day!

A worthwhile break in the day! August 6th, 2012mcfadyena
06 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

A worthwhile break in the day!

Sticky Post By mcfadyena On 6 August, 2012

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A worthwhile break in the day!

A worthwhile break in the day! August 6th, 2012mcfadyena
05 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Tranquility…

Sticky Post By mcfadyena On 5 August, 2012

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Tranquility...

Tranquility… August 5th, 2012mcfadyena
05 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Tranquility…

Sticky Post By mcfadyena On 5 August, 2012

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Tranquility...

Tranquility… August 5th, 2012mcfadyena
05 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Back from our peaceful weekend. Recharged and ready to go! Big week ahead with #Treatment4Violet and the launch of #ProjectOneMillion!

Sticky Post By mcfadyena On 5 August, 2012

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Back from our peaceful weekend. Recharged and ready to go!  Big week ahead with #Treatment4Violet and the launch of #ProjectOneMillion!

Back from our peaceful weekend. Recharged and ready to go! Big week ahead with #Treatment4Violet and the launch of #ProjectOneMillion! August 5th, 2012mcfadyena
02 Aug 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac reading to Gabriel. #precious

Sticky Post By mcfadyena On 2 August, 2012

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Isaac reading to Gabriel. #precious

Isaac reading to Gabriel. #precious August 2nd, 2012mcfadyena
31 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Violet – Let's work to save this little girl! #Hope

Sticky Post By mcfadyena On 31 July, 2012

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Violet - Let's work to save this little girl! #Hope

Violet – Let's work to save this little girl! #Hope July 31st, 2012mcfadyena
29 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

#BestFriends

Sticky Post By mcfadyena On 29 July, 2012

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#BestFriends

#BestFriends July 29th, 2012mcfadyena

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