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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

13 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Almost ready for sound check with Ron Sexsmith at our GALA FOR A CURE! #projectonemillion

Sticky Post By mcfadyena On 13 October, 2012

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Almost ready for sound check with Ron Sexsmith at our GALA FOR A CURE! #projectonemillion

Almost ready for sound check with Ron Sexsmith at our GALA FOR A CURE! #projectonemillion October 13th, 2012mcfadyena
12 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My nutbar son. Unrecognizable by gala time!

Sticky Post By mcfadyena On 12 October, 2012

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My nutbar son. Unrecognizable by gala time!

My nutbar son. Unrecognizable by gala time! October 12th, 2012mcfadyena
11 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac – reading over the Gala for a Cure attendance list and getting excited about the people he loves coming on Saturday!

Sticky Post By mcfadyena On 11 October, 2012

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Isaac - reading over the Gala for a Cure attendance list and getting excited about the people he loves coming on Saturday!

Isaac – reading over the Gala for a Cure attendance list and getting excited about the people he loves coming on Saturday! October 11th, 2012mcfadyena
07 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

New Fire Pit

Sticky Post By mcfadyena On 7 October, 2012

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New Fire Pit

New Fire Pit October 7th, 2012mcfadyena
07 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Gala Booklet Almost Done!

Sticky Post By mcfadyena On 7 October, 2012

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Gala Booklet Almost Done!

Gala Booklet Almost Done! October 7th, 2012mcfadyena
06 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Seeing my rage sauce on the table never gets old :-)

Sticky Post By mcfadyena On 6 October, 2012

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Seeing my rage sauce on the table never gets old :-)

Seeing my rage sauce on the table never gets old 🙂 October 6th, 2012mcfadyena
06 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Wine makes the workday better :-) #projectonemillion

Sticky Post By mcfadyena On 6 October, 2012

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Wine makes the workday better :-) #projectonemillion

Wine makes the workday better 🙂 #projectonemillion October 6th, 2012mcfadyena
05 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My brave boy…#projectonemillion

Sticky Post By mcfadyena On 5 October, 2012

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My brave boy...#projectonemillion

My brave boy…#projectonemillion October 5th, 2012mcfadyena
03 Oct 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Still, and always will be, surreal to see my son on the front page of the newspaper. #projectonemillion

Sticky Post By mcfadyena On 3 October, 2012

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Still, and always will be, surreal to see my son on the front page of the newspaper. #projectonemillion

Still, and always will be, surreal to see my son on the front page of the newspaper. #projectonemillion October 3rd, 2012mcfadyena
28 Sep 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Crazy Gabe.

Sticky Post By mcfadyena On 28 September, 2012

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Crazy Gabe.

Crazy Gabe. September 28th, 2012mcfadyena
28 Sep 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My Gabe painting for my boy :-) – Sick Kids 2012

Sticky Post By mcfadyena On 28 September, 2012

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My Gabe painting for my boy :-) - Sick Kids 2012

My Gabe painting for my boy 🙂 – Sick Kids 2012 September 28th, 2012mcfadyena

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