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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

Instagram Photos

17 Jun 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

The boys with their Poppa :-)

Sticky Post By mcfadyena On 17 June, 2013

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The boys with their Poppa :-)

The boys with their Poppa 🙂 June 17th, 2013mcfadyena
11 Jun 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac is ready to board the #torontodreamlift trip to Disney with his favourite people from Sick Kids!

Sticky Post By mcfadyena On 11 June, 2013

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Isaac is ready to board the #torontodreamlift trip to Disney with his favourite people from Sick Kids!

Isaac is ready to board the #torontodreamlift trip to Disney with his favourite people from Sick Kids! June 11th, 2013mcfadyena
07 Jun 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Dairy Queen :-)

Sticky Post By mcfadyena On 7 June, 2013

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Dairy Queen :-)

Dairy Queen 🙂 June 7th, 2013mcfadyena
26 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Little Bikers :-)

Sticky Post By mcfadyena On 26 May, 2013

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Little Bikers :-)

Little Bikers 🙂 May 26th, 2013mcfadyena
25 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Crossing the finish line! Isaac and Jasper. #HOPE

Sticky Post By mcfadyena On 25 May, 2013

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Crossing the finish line! Isaac and Jasper. #HOPE

Crossing the finish line! Isaac and Jasper. #HOPE May 25th, 2013mcfadyena
25 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

We're off! RUN FOR ISAAC 2013! #HOPE

Sticky Post By mcfadyena On 25 May, 2013

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We're off!  RUN FOR ISAAC 2013! #HOPE

We're off! RUN FOR ISAAC 2013! #HOPE May 25th, 2013mcfadyena
25 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac and Jasper – a special, and very rare, bond. #HOPE

Sticky Post By mcfadyena On 25 May, 2013

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Isaac and Jasper - a special, and very rare, bond. #HOPE

Isaac and Jasper – a special, and very rare, bond. #HOPE May 25th, 2013mcfadyena
25 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac, a pro for the television cameras, and the perfect spokesperson for HOPE. #cbcottawa

Sticky Post By mcfadyena On 25 May, 2013

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Isaac, a pro for the television cameras, and the perfect spokesperson for HOPE. #cbcottawa

Isaac, a pro for the television cameras, and the perfect spokesperson for HOPE. #cbcottawa May 25th, 2013mcfadyena
25 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

RUN FOR ISAAC! 2013 has raised over $14,000! #HOPE #JourneyForJasper

Sticky Post By mcfadyena On 25 May, 2013

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RUN FOR ISAAC! 2013 has raised over $14,000! #HOPE #JourneyForJasper

RUN FOR ISAAC! 2013 has raised over $14,000! #HOPE #JourneyForJasper May 25th, 2013mcfadyena
22 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Hot off the press! #HOPE

Sticky Post By mcfadyena On 22 May, 2013

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Hot off the press! #HOPE

Hot off the press! #HOPE May 22nd, 2013mcfadyena
22 May 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Hot off the press! #HOPE

Sticky Post By mcfadyena On 22 May, 2013

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Hot off the press! #HOPE

Hot off the press! #HOPE May 22nd, 2013mcfadyena

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