Instagram Photos | The Isaac Foundation

16 Sep 2014

Sticky Post By mcfadyena Posted in Blog Postings, Instagram Photos Permalink

Always a trooper. #Brave

Sticky Post By mcfadyena On 16 September, 2014

Quick…well not that quick, visit to Sick Kids Hospital in Toronto today for Orthopaedic Surgeon followup. It was a 4 hour wait (really, this needs to be fixed) to see the surgeon, but he had great news!

Isaac’s kyphosis (curvature of the spine) has improved by 4%, and his slipped disc has corrected itself. While we can’t be certain, we’re convinced it’s the effect that Elmiron has had on him.

Truly grateful.

18 Aug 2014

Sticky Post By mcfadyena Posted in Blog Postings, Instagram Photos Permalink

MPS Dads – West Coast Edition ;)

Sticky Post By mcfadyena On 18 August, 2014

Had a great visit with Dane Sadownyk today on the anniversary of Aleena’s treatment approval! What a great family, and an inspiration to all families fighting MPS.

I look forward to many years working together, Dane. Thanks for a great visit.

18 Aug 2014

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Another one of Isaac and Aleena. Very special :) #hope

Sticky Post By mcfadyena On 18 August, 2014

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Another one of Isaac and Aleena. Very special :) #hope

18 Aug 2014

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Isaac McFadyen and Aleena Sadownyk. Incredible #Hope for the future :)

Sticky Post By mcfadyena On 18 August, 2014

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Isaac McFadyen and Aleena Sadownyk. Incredible #Hope for the future :)

18 Aug 2014

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1 year treatment anniversary for Aleena! Celebrating with dinner. She is happy, healthy, and incredibly brave. #hope

Sticky Post By mcfadyena On 18 August, 2014

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1 year treatment anniversary for Aleena! Celebrating with dinner. She is happy, healthy, and incredibly brave. #hope

11 Aug 2014

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MPS Dads. A great visit with Darren More, my partner in crime and friend for life. #thankful

Sticky Post By mcfadyena On 11 August, 2014

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MPS Dads. A great visit with Darren More, my partner in crime and friend for life. #thankful

01 Jun 2014

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Cross-Canada RUN FOR A CURE! Continues today in Calgary! Go Sadownyk family! So far, we are@over $34,000 raised to@ find a cure!

Sticky Post By mcfadyena On 1 June, 2014

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Cross-Canada RUN FOR A CURE! Continues today in Calgary! Go Sadownyk family! So far, we are@over $34,000 raised to@ find a cure!

25 May 2014

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Done! Ellen was awesome! #hope

Sticky Post By mcfadyena On 25 May, 2014

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Done! Ellen was awesome! #hope

25 May 2014

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Running with a few others today :-) I'll be tweeting during the race! Follow us @isaacfoundation on twitter!

Sticky Post By mcfadyena On 25 May, 2014

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Running with a few others today :-) I'll be tweeting during the race! Follow us @isaacfoundation on twitter!

25 May 2014

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Ready to run our 1/2 Marathon for MPS! #Hope

Sticky Post By mcfadyena On 25 May, 2014

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Ready to run our 1/2 Marathon for MPS! #Hope

24 May 2014

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Crossing the finish line – Jack, Jasper, and Isaac. MPS Heroes, and the reason we work as hard as we do. #HOPE

Sticky Post By mcfadyena On 24 May, 2014

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Crossing the finish line - Jack, Jasper, and Isaac. MPS Heroes, and the reason we work as hard as we do. #HOPE