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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

All posts by mcfadyena

06 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Mary Poppins on Broadway!

Sticky Post By mcfadyena On 6 July, 2012

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Mary Poppins on Broadway!

Mary Poppins on Broadway! July 6th, 2012mcfadyena
05 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Visited the Plaza Hotel, site of the boys fav movie Home Alone! Isaac is doing his best impression.

Sticky Post By mcfadyena On 5 July, 2012

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Visited the Plaza Hotel, site of the boys fav movie Home Alone!  Isaac is doing his best impression.

Visited the Plaza Hotel, site of the boys fav movie Home Alone! Isaac is doing his best impression. July 5th, 2012mcfadyena
05 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

A Beautiful Walk Through Central Park.

Sticky Post By mcfadyena On 5 July, 2012

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A Beautiful Walk Through Central Park.

A Beautiful Walk Through Central Park. July 5th, 2012mcfadyena
05 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

More Results. Stunning and so very Hopeful. We're overjoyed. .

Sticky Post By mcfadyena On 5 July, 2012

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More Results. Stunning and so very Hopeful. We're overjoyed. .

More Results. Stunning and so very Hopeful. We're overjoyed. . July 5th, 2012mcfadyena
05 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Isaac learning all about the research being done here, with Lilla Simonaro, the lead researcher. Exciting times!

Sticky Post By mcfadyena On 5 July, 2012

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Isaac learning all about the research being done here, with Lilla Simonaro, the lead researcher. Exciting times!

Isaac learning all about the research being done here, with Lilla Simonaro, the lead researcher. Exciting times! July 5th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Instragram Photo

Sticky Post By mcfadyena On 4 July, 2012

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Instragram Photo

Instragram Photo July 4th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Outside Penn Station. #isaacfoundationNYC

Sticky Post By mcfadyena On 4 July, 2012

Outside Penn Station. #isaacfoundationNYC

Outside Penn Station. #isaacfoundationNYC July 4th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Arrived In The Big City! #isaacfoundationNYC

Sticky Post By mcfadyena On 4 July, 2012

Arrived In The Big City! #isaacfoundationNYC

Arrived In The Big City! #isaacfoundationNYC July 4th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

My Patio Babes! #isaacfoundationNYC

Sticky Post By mcfadyena On 4 July, 2012

My Patio Babes! #isaacfoundationNYC

My Patio Babes! #isaacfoundationNYC July 4th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Sneak Peek – New Website!

Sticky Post By mcfadyena On 4 July, 2012

Sneak Peek - New Website!

Sneak Peek – New Website! July 4th, 2012mcfadyena
04 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Finding Our Way! #isaacfoundationNYC.

Sticky Post By mcfadyena On 4 July, 2012

Finding Our Way! #isaacfoundationNYC.

Finding Our Way! #isaacfoundationNYC. July 4th, 2012mcfadyena

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