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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

All posts by mcfadyena

31 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Violet – Let's work to save this little girl! #Hope

Sticky Post By mcfadyena On 31 July, 2012

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Violet - Let's work to save this little girl! #Hope

Violet – Let's work to save this little girl! #Hope July 31st, 2012mcfadyena
29 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

#BestFriends

Sticky Post By mcfadyena On 29 July, 2012

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#BestFriends

#BestFriends July 29th, 2012mcfadyena
29 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope

Sticky Post By mcfadyena On 29 July, 2012

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Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope

Our first #ProjectOneMillion donation! $999,998 dollars to go! #hope July 29th, 2012mcfadyena
28 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

3 MPS VI kids together for the first time ever in Canada! #hope

Sticky Post By mcfadyena On 28 July, 2012

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3 MPS VI kids together for the first time ever in Canada! #hope

3 MPS VI kids together for the first time ever in Canada! #hope July 28th, 2012mcfadyena
23 Jul 2012
Sticky Post By mcfadyena Posted in Media, Television Permalink

Global News – Violet Revet, The Isaac Foundation, and MPS VI

Sticky Post By mcfadyena On 23 July, 2012
Violet Revet :-)

Global News – Violet Revet, The Isaac Foundation, and MPS VI July 24th, 2013mcfadyena
18 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Matching Hair Cuts Today :-)

Sticky Post By mcfadyena On 18 July, 2012

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Matching Hair Cuts Today :-)

Matching Hair Cuts Today 🙂 July 18th, 2012mcfadyena
17 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Celebration after a long, successful, day. Can't wait to share :-) #ProjectOneMillion

Sticky Post By mcfadyena On 17 July, 2012

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Celebration after a long, successful, day. Can't wait to share :-) #ProjectOneMillion

Celebration after a long, successful, day. Can't wait to share 🙂 #ProjectOneMillion July 17th, 2012mcfadyena
15 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Pool Fun!

Sticky Post By mcfadyena On 15 July, 2012

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Pool Fun!

Pool Fun! July 15th, 2012mcfadyena
14 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

#Precious.

Sticky Post By mcfadyena On 14 July, 2012

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#Precious.

#Precious. July 14th, 2012mcfadyena
14 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

A few young runners for Isaac (and his classmates!).

Sticky Post By mcfadyena On 14 July, 2012

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A few young runners for Isaac (and his classmates!).

A few young runners for Isaac (and his classmates!). July 14th, 2012mcfadyena
13 Jul 2012
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Desert Pizza – The Boys' Creation!

Sticky Post By mcfadyena On 13 July, 2012

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Desert Pizza - The Boys' Creation!

Desert Pizza – The Boys' Creation! July 13th, 2012mcfadyena

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