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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

All posts by mcfadyena

18 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Captain Isaac, touring Calgary.

Sticky Post By mcfadyena On 18 August, 2013

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Captain Isaac, touring Calgary.

Captain Isaac, touring Calgary. August 18th, 2013mcfadyena
17 Aug 2013
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Intense planning session with Uncle Charlie.

Sticky Post By mcfadyena On 17 August, 2013

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Intense planning session with Uncle Charlie.

Intense planning session with Uncle Charlie. August 17th, 2013mcfadyena
17 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

With Aleena. Treatment starts next week, and I couldn't be more happy and proud. #Hope

Sticky Post By mcfadyena On 17 August, 2013

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With Aleena. Treatment starts next week, and I couldn't be more happy and proud. #Hope

With Aleena. Treatment starts next week, and I couldn't be more happy and proud. #Hope August 17th, 2013mcfadyena
17 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

One of the proudest moments of my life. :-)

Sticky Post By mcfadyena On 17 August, 2013

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One of the proudest moments of my life. :-)

One of the proudest moments of my life. 🙂 August 17th, 2013mcfadyena
16 Aug 2013
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Coincidence that I arrive in Alberta and this is the shampoo that is here for me? #treatmemt4aleena #wildroseparty

Sticky Post By mcfadyena On 16 August, 2013

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Coincidence that I arrive in Alberta and this is the shampoo that is here for me? #treatmemt4aleena #wildroseparty

Coincidence that I arrive in Alberta and this is the shampoo that is here for me? #treatmemt4aleena #wildroseparty August 16th, 2013mcfadyena
15 Aug 2013
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Ready to board!

Sticky Post By mcfadyena On 15 August, 2013

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Ready to board!

Ready to board! August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Watch out Club Penguin! Isaac and Gabriel are on their way :-)

Sticky Post By mcfadyena On 15 August, 2013

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Watch out Club Penguin!  Isaac and Gabriel are on their way :-)

Watch out Club Penguin! Isaac and Gabriel are on their way 🙂 August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Oh – JM signed guitar for our Gala silent auction :-)

Sticky Post By mcfadyena On 15 August, 2013

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Oh - JM signed guitar for our Gala silent auction :-)

Oh – JM signed guitar for our Gala silent auction 🙂 August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

@mrjcmayer – The boys were thrilled to see their guitar strap on stage most of the night.

Sticky Post By mcfadyena On 15 August, 2013

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@mrjcmayer - The boys were thrilled to see their guitar strap on stage most of the night.

@mrjcmayer – The boys were thrilled to see their guitar strap on stage most of the night. August 15th, 2013mcfadyena
15 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Giving a gift of thanks – new guitar strap :-)

Sticky Post By mcfadyena On 15 August, 2013

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Giving a gift of thanks - new guitar strap :-)

Giving a gift of thanks – new guitar strap 🙂 August 15th, 2013mcfadyena
15 Aug 2013
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Fun together.

Sticky Post By mcfadyena On 15 August, 2013

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Fun together.

Fun together. August 15th, 2013mcfadyena

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