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  • Home
  • About
    • Our Mission Statement
    • Board Members
  • Research
  • Donate Now!
  • Contact Us
  • Patient Education
    • Hunter Syndrome
    • Project Alive
    • Morquio Syndrome
    • LAL-D
    • Spinal Muscular Atrophy
    • Batten Disease

All posts by mcfadyena

02 Sep 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Cooking with Nanny :-)

Sticky Post By mcfadyena On 2 September, 2013

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Cooking with Nanny :-)

Cooking with Nanny 🙂 September 2nd, 2013mcfadyena
02 Sep 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Apparel heading out West to the Sadownyk family :-)

Sticky Post By mcfadyena On 2 September, 2013

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Apparel heading out West to the Sadownyk family :-)

Apparel heading out West to the Sadownyk family 🙂 September 2nd, 2013mcfadyena
30 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Just printed the first MPS II shirt for Deb Purcell's MPS II Fund, administered through The Isaac Foundation! We certainly GOT HOPE!

Sticky Post By mcfadyena On 30 August, 2013

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Just printed the first MPS II shirt for Deb Purcell's MPS II Fund, administered through The Isaac Foundation!  We certainly GOT HOPE!

Just printed the first MPS II shirt for Deb Purcell's MPS II Fund, administered through The Isaac Foundation! We certainly GOT HOPE! August 30th, 2013mcfadyena
29 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Recording the boys #paradisevalley by @mrjcmayer review. Done soon :-)

Sticky Post By mcfadyena On 29 August, 2013

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Recording the boys #paradisevalley by @mrjcmayer review. Done soon :-)

Recording the boys #paradisevalley by @mrjcmayer review. Done soon 🙂 August 29th, 2013mcfadyena
23 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Spreading the #sunshine before we head home.

Sticky Post By mcfadyena On 23 August, 2013

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Spreading the #sunshine before we head home.

Spreading the #sunshine before we head home. August 23rd, 2013mcfadyena
22 Aug 2013
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Working in the kitchen as CHEFS at the Banff Springs Resort. They have created incredible meals!

Sticky Post By mcfadyena On 22 August, 2013

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Working in the kitchen as CHEFS at the Banff Springs Resort. They have created incredible meals!

Working in the kitchen as CHEFS at the Banff Springs Resort. They have created incredible meals! August 22nd, 2013mcfadyena
22 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Pro Bowlers!

Sticky Post By mcfadyena On 22 August, 2013

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Pro Bowlers!

Pro Bowlers! August 22nd, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

Dinner after an incredible day. Playing with their new Puffle Friends :-)

Sticky Post By mcfadyena On 21 August, 2013

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Dinner after an incredible day. Playing with their new Puffle Friends :-)

Dinner after an incredible day. Playing with their new Puffle Friends 🙂 August 21st, 2013mcfadyena
21 Aug 2013
Sticky Post By mcfadyena Posted in Instagram Photos Permalink

An amazing visit with CP creator Lane Merrifield.

Sticky Post By mcfadyena On 21 August, 2013

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An amazing visit with CP creator Lane Merrifield.

An amazing visit with CP creator Lane Merrifield. August 21st, 2013mcfadyena
21 Aug 2013
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Lunch with Lane Merrifield at Club Penguin :-)

Sticky Post By mcfadyena On 21 August, 2013

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Lunch with Lane Merrifield at Club Penguin :-)

Lunch with Lane Merrifield at Club Penguin 🙂 August 21st, 2013mcfadyena
21 Aug 2013
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Moderating!

Sticky Post By mcfadyena On 21 August, 2013

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Moderating!

Moderating! August 21st, 2013mcfadyena

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