THE ISAAC FOUNDATION

LOVE

PROVIDING SUPPORT AND ADVOCACY FOR PATIENTS AND FAMILIES COPING WITH RARE DISEASES
What We Do
our-mission-statement

Our Mission Statement

 

Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.  

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided almost $1 million to research grants that seek to cure MPS, and administer the highly successful MPS II Fund, dedicating every dollar donated to research projects around the world.  We will continue to work tirelessly to raise awareness of this disease, and support and educate families as they deal with the devastating diagnosis that MPS can bring, until we find a cure.

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Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.
Margaret Mead
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Everything. Simply. Stops.


When someone is diagnosed with a rare disease, it’s heartbreaking.  Everything. Simply. Stops.  Hope seems lost, and there seems like there is nowhere to turn.

1 in 10 people currently live with a rare disease.  30% of children affected with a rare disease won’t live to see their 5th birthday.  Yet, 95% of rare diseases have no available treatment option.

These statistics are staggering.  But there is Hope.  At the Isaac Foundation, we’re here to help.  Reach out to us for support, education, or help gaining access to the life-saving treatments you or your child need.

You won’t have to do this alone.  Please reach out to us today for help and support.

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COVID-19 Update

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